Research information
Clinical Practice Research Datalink information
The MyMelanoma Research Study
MyMelonoma is partnership between people who have been affected by melanoma, clinicians and researchers to form the largest melanoma research study in the world.
MyMelanoma is designed to answer the ost important unanswered questions in melanoma research.
MyMelanoma isopen to anyone who has ever been diagnosed with a melanoma of the skin, of the mucosal surfaces (eg. nose, genitals) or under the nails.
Will you join us?
To sign up to be part of MyMelanoma or if you have any questions for us, please visit our website: www.mymelanomaastudy.org
Improve Hyperacusis Research
Are you sensitive to sound?
Hyperacusis is a hearing disorder involving increased sensitivity to everyday sounds that would not trouble most people.
How do we measure the impact of Hyperacusis?
Questinnaires are used. Yet we do not know if they are reliable, useful or relevant to your experiences of Hyperacusis.
If you are an adult experiencing hyperacusis, we need you to complete our online questionnaire survey on two seperate occasions and tell us your views and opinions on the questionnaires for hyperacusis.
Never seen a hyperacusis questionnaire, not a problem, we still want your views.
For more details or to register:
https://app.onlinesurveys.jisc.ac.uk/s/-nottingham/ishush-eoi
or email: kathryn.fackrell@nottingham.ac.uk
Impulse control in Parkinson's Disease
University Hospitals Birmingham NHS Foundation Trust are seeking individuals with Parkinson’s disease who are either:
i) not yet taking medication
OR
ii) taking ropinirole as part of their medications (also known as Requip, Repinex, Aimpart, Ippinia, Ralnea, Raponer, Ropilynz, Ropiqual and Spiroco)
Their aim is to look at the mechanisms underlying how you control your movements. To examine this, they will measure your brain activity during a simple task involving finger movements, using non-invasive brain stimulation and recording techniques.
The study involves two 3-hour sessions, which take place at the University of Birmingham.
They provide compensation of £10/hour (approx. £60 in total) for your time, cover travel expenses and can provide accommodation.
If you take part in this research, they can learn more about how impulse control is affected in Parkinson’s. In the long term, we hope this information will help us to better predict individuals with a higher risk of developing an impulse control disorder.
If you would like more information, please contact Aliya Warden via email at: ach722@bham.ac.uk or phone: 07557 028358.
IRAS ID: 328075 (v1 31/07/2023)
The SELF-FRAX Study
We have sent out 500 invitations via text to a random group of patients inviting them to partake in this study being co-ordinated by the University of Sheffield.
The SELF-FRAX Study
This research is studying 'Osteoporosis'. A disease that causes a weakening of bones making them break (fracture) more easily.
The SELF-FRAX study aims to raise awareness of fracture risk factors and improve osteoporosis care.
This is an online study (however paper-based participation is also possible). You will not need to attend any GP or hospital appointments.
If you would like more information or to receive paper-based study documents through the post, please contact:
The Bone Research Team
Phone: 0114 215 9697
Email: m.a.paggiosi@sheffield.ac.uk